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NF Awareness Month

This is a letter that my cousin, Mia wrote to the local newspaper!
I am 11 years old, and I have a genetic disease. There is no cure or treatment for my disease. My genetic disease is called neurofibromatosis. I have many marks that look like birthmarks. This was the doctor's first clue that I have neurofibromatosis. I have to go to special doctors in St. Louis every year. What I get scared about is that it will hurt me some day. Sometimes I have bad dreams about what could happen to me. I don't know anyone else who has this. This is NF Awareness Month for all the people who might not know that. I am one of the kids who is part of this month, but I bet there are more people with what I have. I wanted to share this with you in case you did not know that May is NF Awareness Month.

MIA

So I know that I haven't blogged in like 4 months. I'd like to say that I've been to busy but I think I was too lazy. I think there's only like 2 people that ever read this so this is for you! Jase is getting so big and wild and funny! He is the cutesy little boy ever! He's started a new preschool and is learning so much! I've decided to go back to school and finish my degee. Ok, more later!

Happy Valentine's Day!

I love your fingers, I love your toes.

I love your mouth, I love your nose.

I love your eyes, I love your ears.

I love your laugh, I love your tears.

I love your touch, I love your smell.

I will protect you, I'll be your shell.

You give me love, You give me joy.

I love you, my baby boy!

HAPPY 2nd BIRTHDAY JASE!!!!!!!!!

It's hard to believe that my little baby boy is almost two! Wow, how the time has flown by. He is the most precious thing in the world and I thank God for him every day! I love you Jasey!!!

Jase Monster

I believe Jase has come into the terrible 2's a little early! Here is our week in Jase incidents.
(Keep in mind he's learning to potty train and he usually tells us when he needs to go.)

Poops on the bathroom floor. Poops in bedroom floor.
Colors on his walls and bed with crayons and markers, twice.
Dumps shampoo and conditioner on the bathroom floor and plays in it.
Learns to say "No Way!"
Fights me for 20 minutes at daycare to get him into the car seat!
Want to take a shower with Dad, Dad says no, Jase says "Peas Daddy" and gives him a kiss and hug. Jase takes a shower with Daddy.
Sticks a googley eye up his nose while driving down the interstate. Nose bleeds, pull over, don't see anything. Jase tells me all night and the next morning that he has "eyeball in nose". Take him to doctor, find eyeball in floorboard after dr. visit.
Goes poo-poo in potty. Poo-poos on counter while washing hands.
Calls Maw-Maw, wants Nae-Nae.
Wants to talk to Atchy, won't talk to Atchy.
Flushes toilet obsessively!
Drops fingernail clippers in toilet.
Climbed out the doggy door, several times.
Played outside on a nice day. Jase climbs into the sand box that is full of water twice!
Puts Daddy's deoderant in toilet. Don't tell Josh.
Climbs up EVERYTHING!
Wants to watch Elmo on the tv and computer!

What will next week bring??? Hopefully nothing worse than this week.

Christmas Time

Jase's Second Christmas!Jase and Cam washing dishes (or playing in bubbles!) Maw-Maw reading a book to Camden and Jase.

Nae-Nae and Jase

Jase and his new Mow-mow!

Snow Daze!

Jase loved playing in the snow!